Lee Aase (@leeaase)
Director, Mayo Clinic Center for Social Media
Activity by Lee Aase
ROCHESTER, Minn. — July 10, 2012. The Mayo Clinic Center for Social Media today announced a research contest encouraging measurement and validation of the application of social media tools to improve health care, promote health and fight disease.
The contest, held in conjunction with the annual member meeting of Mayo's Social Media Health Network, Oct. 18–19, 2012, seeks submission of research-based abstracts and case studies demonstrating benefits of social media throughout the health care ecosystem.
"When Mayo Clinic's leaders established our Center for Social Media two years ago this month, they gave us a broad mandate to identify beneficial applications of social media in health care," says Farris Timimi, M.D.,
medical director for the center. "They also encouraged us to collaborate with others in health care to disseminate best practices through our Social Media Health Network. We hope this research-based contest and the scientific session at our member meeting will help catalyze measurement of social media interventions and sharing of findings."
The Social Media Health Network member meeting caps social media week at Mayo Clinic, which begins with Mayo's two-day Social Media Residency and includes its annual Social Media Summit, produced in collaboration with Ragan Communications. A panel will evaluate submissions for scientific merit, with qualified abstracts to be displayed and discussed in a poster session at the beginning of the member meeting.
Authors of the three highest-ranking abstracts will receive complimentary admission to both the summit and the member meeting and will present their findings orally at a plenary session.
Spontaneous Coronary Artery Dissection (SCAD) is a relatively rare and poorly understood condition that seems to affect more women than men. The coronary arteries consist of three layers, and dissection occurs when two of these layers separate, enabling blood to flow into the space between the layers. As the blood accumulates, this can cause obstruction to normal blood flow within the heart, leading to chest pain, heart attack and even sudden death.
Because SCAD is relatively rare, the medical community has much to learn about treatment and prevention of this potentially fatal cardiovascular event.
Mayo Clinic is conducting two new studies of SCAD. One involves building a database of patients with SCAD (whether they have been patients at Mayo Clinic or not) to hopefully identify patterns that could guide future research. Another involves creating a biobank of blood samples from patients with SCAD and their close relatives, to potentially see whether genetic factors play a role in development of SCAD.
To be eligible to participate in the studies, you or a close relative need to have a confirmed diagnosis of SCAD, which is done through a coronary angiogram. If you are interested in learning more about the studies and whether you may be eligible, please contact the study coordinator at (507) 266-3180.
With your consent, Mayo Clinic staff will request a CD of your angiograms from your physician, to determine whether you qualify for the studies. If you are eligible, they will contact you and provide more information about the studies and ask you to sign an informed consent document.
Please note that the comments section below is not the place to indicate your interest in the study. If you would like more information about study participation, contact the research team - Dr. Sharonne Hayes or study coordinator Jill Boyum - call (507) 266-3180 or fax your contact information to (507) 284-5907.
A Mayo Clinic study published this month in Pacing and Electrophysiology (PACE), suggests that a class of medications more commonly prescribed for older adults is a strong first-line treatment for teenagers with a debilitating condition called postural orthostatic tachycardia syndrome, or POTS.
Phil Fischer, M.D., medical director of Mayo Clinic's children's hospital and a POTS specialist, led the retrospective study of teenagers diagnosed with POTS at Mayo Clinic. The patients were surveyed approximately a year after their diagnosis, and while over half of those taking midodrine reported improvement in symptoms, all of those taking β-blockers had felt improvement.
Dr. Fischer provides an overview of POTS, the study results and their implications for treatment of future patients with POTS:
"This is a small study, but it is an important step because POTS is not well understood even within the medical community," Dr. Fischer explains. "POTS is a real syndrome in which the patient's heart rate accelerates abnormally when moving from lying down to standing up, and it causes a whole cascade of symptoms from fatigue to stomach upset that are often mistaken for depression. This study points to the important role medications can play, in conjunction with other changes, to help these mostly high-achieving young people get their lives back."
As you can see from the extensive comments in response to the POTS podcast, there would be no shortage of patients to possibly include in a news story about this study. Another interesting angle is that the brother of the patient featured in the 2006 Mayo Clinic Medical Edge TV story raised the funds to pay for the statistical analysis required for the study on medication effectiveness being reported this month in PACE.