WHAT: “Feel the Beat” brings together families, researchers and clinicians to learn more about, and raise awareness of, hypoplastic left heart syndrome (HLHS), a rare and complex form of congenital heart disease in which the left side of a child's heart is severely underdeveloped. The event, built around science, advocacy, families and patients, invites those in the HLHS community to share experiences while discovering the unique regenerative therapies being pioneered for congenital heart disease. Children and families from across the U.S. will participate in team-building challenges and interactive sessions led by physicians and researchers.
WHERE: Mayo Clinic, Gonda Building, Rochester, Minnesota
WHEN: Saturday, Oct. 17, 10 a.m.-3 p.m. To view the itinerary, visit the HLHS Cause to Cure blog.
WHO: Interviews are available with Timothy Nelson, M.D., Ph.D., director, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome and Christopher Moir, M.D., a Mayo Clinic pediatric surgeon who led the team to successfully separate 5-month-old conjoined twins in 2006.
This year’s guests include Ethan Bortnick, a 14-year-old piano prodigy who has been playing for audiences worldwide and Joslynn Jarrett-Skelton, author of the book series “Charlie the Courageous.” At approximately 11:30 a.m., the children will be joined by the “superhero window washers,” who will make a surprise entrance to greet the children from the windows outside of the Gonda atrium and pose for pictures.
MEDIA CONTACT: RSVP to Jennifer Schutz, Mayo Clinic Public Affairs, at 507-284-5005 or firstname.lastname@example.org