https://newsnetwork.mayoclinic.org/discussion/coping-with-lewy-body-part-1/ News Resources Mon, 22 Aug 2011 18:02:36 +0000 hourly 1 https://wordpress.org/?v=6.7.2 https://newsnetwork.mayoclinic.org/discussion/coping-with-lewy-body-part-1/#comment-3368 Mon, 22 Aug 2011 18:02:36 +0000 https://sharing.mayoclinic.org/?p=9618#comment-3368 after studing many yrs,from which I first was aware of dlb and lbd. 40 yrs of taking care of alzheimer;s and parkinson patients. I finally became aware that the two although associated were 2 different kind of lewey bodies. a muscular dystrophy illness.
the associations and symtoms are the same although with dlb w/als organ’s shut down rapidly and deteration of muscles and lung funtion are eminent . my studies showed early onset of dlb from ages 16 to 20 slowly progressing till the ages of 36 t0 40 some cases older, before actual signs really take notice from experinced geriatric doctors. in one case child born with a slight form of arnold chiari type 1 malformation. my conclusion is 2 types, lbd and dlb w/als both with same simular symptoms. a defintate family of MUSCULAR DYSTROPHY. MY HUSBANDS DEATH WAS DLB W/ALS. NO CONNECTION TO ALZHEIMERS lewy bodies is a desease of its own a muscular dystrophy illness.

]]> https://newsnetwork.mayoclinic.org/discussion/coping-with-lewy-body-part-1/#comment-3367 Thu, 18 Aug 2011 03:09:26 +0000 https://sharing.mayoclinic.org/?p=9618#comment-3367 Dear Don,
Thank you for sharing your personal journey. I am grateful that you are brave enough to teach us about your condition by journaling your experiences. I am grateful, for the next patient I see who describes these similar experiences, will benefit from your generouse spirit and elopuent prose. Thank you.

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