Comments on: Coping with Lewy Body – Part 2

By: Barb Mollberg

Barb Mollberg — Sun, 10 Mar 2013 03:34:57 +0000

Hello Don,

Thank you for sharing information about your personal journey with LBD. I learned today that my dear Mother has been diagnosed with this disease. Your description of your experience and observations about helpful activities is much appreciated. I will suggest that my family members read your jounal entries and will also seek out the other reference you mentioned.

I will say a prayer every day for all those with LBD.
Barb

By: ruth nemeth

ruth nemeth — Sat, 09 Feb 2013 18:02:32 +0000

My husband,62 yrs old was diagnosed with LBD last March 2012. He was a sitting magistrate. Started losing vocabulary and concentration. Became paranoid and also had hallucinations. One of the newest medications they started him on was Saphris, and the paranoia and hallucinations have stopped, thinking his dementia may be another type. Has any one else had a equal or like experience. So happy to have found this site. Will also find LBD Journal site. Thank you so much. Ruth

By: Ken

Ken — Thu, 10 May 2012 01:13:19 +0000

Good on you my friend. Right now I’m waiting for the doctors to tell me what is wrong with my head. Little green space men are with me most of the time. The frustration I feel is becoming worse and worse.
I really wish my friends would talk but thet will not.

Ken

By: Barbara

Barbara — Fri, 19 Aug 2011 01:25:29 +0000

This article touched my heart. Any health problem is hard to deal with, but I think that you are doing that very well.
I am dealing with a cancer Chondrosarcoma now, and can tell you that the friends drop off real quickly, no matter what the disease.

You are in my thoughts,
Barbara