Comments on: Epilepsy Surgery Allows Patient to Live Life to the Fullest

By: Isma Tamale

Isma Tamale — Mon, 26 Dec 2011 07:44:55 +0000

I have a sister living in Uganda. She’s 29 years old, and she has had seizures since she was like 12 years old. I am looking for a way for her to get medical treatment, but I can’t so far, I haven’t found anything. Does anyone know a place I can go to get her medical attention? I would love to bring her to the US, and to the Mayo Clinic, but I am not sure I can afford it. Does anyone know any possible solution (for example a clinic or hospital in Uganda or somewhere in Africa — would prefer because of cost) to this? I am a U.S. citizen, but still don’t have the financials to cover for such an operation. Any advice? I really need help in this as her condition is worsening. The last time she had a seizure, it was so bad that she had to receive special treatment for her space because of all the injuries from the seizure.

Thanks,
Isma

By: makalajohnson

makalajohnson — Thu, 27 Oct 2011 19:15:40 +0000

Thanks for sharing this story! If you are interested in elaborating for a separate blogpost, please submit the text to socialmediacenter@mayo.edu and indicate “Sharing Mayo Clinic” in the subject line. We would then be in contact with you. Thanks again!

By: makalajohnson

makalajohnson — Thu, 27 Oct 2011 19:14:22 +0000

In reply to Joe Waitekus.

Thanks for sharing this comment. If you are interested in elaborating for a separate blogpost, please submit the text to socialmediacenter@mayo.edu and indicate “Sharing Mayo Clinic” in the subject line. Thanks again!

By: Robert

Robert — Thu, 27 Oct 2011 01:28:31 +0000

I’ve had petit mal epilepsy since I was 13. I’m now almost 26. I take 300 mg of Topamax a day and have been seizure free about 3 years. Would love to get more information about this. It really would s

By: Anita Blackmond

Anita Blackmond — Tue, 25 Oct 2011 23:21:50 +0000

My daughter started having seizures at one year old & they continue throughout her childhood & young adult at 22 years old she had left temporal lobe surgery & has been seizure free for 3 years in November.
Her surgery was a IU Hospital in Indianapolis the doctors & surgeon were awesome. Now she is driving, a volunteer for the epilepsy foundation of Indiana, Angels for Epilepsy & leads a local epilepsy support group. Thanking God for using her to help others.

By: Heather Erickson

Heather Erickson — Tue, 25 Oct 2011 17:38:38 +0000

My 17 year old son had his first sizure at age 3. He also has CP. His seizures were controlled up until Middle School, then woresening in High School. We finally went to the Mayo Clinic in Rochester this past spring. With surgery to follow in August. So far so good. He hasn’t come off the meds yet – but we are hopeful. The experiece was wonderful at the Mayo Clinic. I would reccomend this place to anyone. I am in Tennessee.

By: Joe Waitekus

Joe Waitekus — Tue, 25 Oct 2011 16:39:42 +0000

A great testimony Carla. My 10 year old son had a very similar situation with seizures. We went through some very difficult times trying to find resolutions in Boston. Through some networking we found about the Mayo Clinic in MN. We were at our end of the rope in Boston, so we made the trip out there for testing, then returned a few months later for my son’s brain surgery. All I can say is that to us, from day 1, from the doorman to the surgeon, the Mayo Clinic was like heaven on earth. It’s been a year this month that my son had surgery and he remains seizure free. Thank you for sharing your story.