Comments on: Finding Answers at Mayo Clinic

By: Goldia tolley

Goldia tolley — Sun, 28 Apr 2013 16:54:46 +0000

In reply to TNhelpASAP. I also was a tn person that suffered torment.After years of pain,. i now have the motor cortex brain stimulator.I thank GOD for this.If,, at all possible take your Mom to the Mayo Clinic for an evaluation. You will see a team of phys,. that will dig until they find an answer for your Mom.Please,believe me there is life after the torment we have gone through.May our Lord bless you and Please tell your Mom, there is life after death{called trigeminal neuralgia}.

By: TNhelpASAP

TNhelpASAP — Fri, 01 Mar 2013 06:57:00 +0000

My mom received a TN diagnosis many years ago. It seemed there was one diagnosis and treatment after another before she got her TN diagnosis. At this point in time she has had numerous teeth extracted, a rf ablation, more injections (of who knows what) than I can count, eats only soft foods, and rarely leaves her bed. Her depression is unimaginable, and she is entirely unrecognizable (both in physicality and personality) as the person she was ten years ago. The pain she experiences has left us with a stranger. She lost hope long ago that she will ever have a ‘normal’ life without pain so severe that it makes her wish for death. I hope for my mother back with every doctor visit and I’m worried that she reaching a point where she can’t keep going. She wants to give up, but I don’t. I’ve been trying to have enough hope for all of us… but it feels like we’re reaching a breaking point. Is there someone who can give me some guidance in terms of how I can help her? Please?

By: stacytheobald

stacytheobald — Wed, 20 Feb 2013 22:06:48 +0000

In reply to william Sie. Hi William, please contact the appointment office at Mayo Clinic in Arizona 800-446-2279 (toll free) 8 a.m. to 5 p.m. Mountain Standard Time, Monday through Friday.

By: william Sie

william Sie — Wed, 20 Feb 2013 19:52:44 +0000

I have had the constant burning type trigeminal pain for nearly five years and take pain medicines at this time to control the pain..if i were to visit the MAYO CLINIC in ARIZONA to see if there are other alternatives to address my pain..who would I contact to not waste time in setting up appts.

By: Blanche miller

Blanche miller — Fri, 15 Feb 2013 03:11:26 +0000

Unexpectedly from time to time through the day. Extremely painful. I am hoping every day it will leave for a few months.

By: mayoclinic

mayoclinic — Fri, 11 Jan 2013 22:23:08 +0000

In reply to Ruby Ulseth.

Unfortunately, we cannot diagnose conditions, provide second opinions or make specific treatment recommendations through this correspondence. If you would like to seek help from Mayo Clinic, please call one of our appointment offices. The numbers can be found at http://www.mayoclinic.org/ under “request an appointment.”

By: mayoclinic

mayoclinic — Fri, 11 Jan 2013 22:23:08 +0000

In reply to Ruby Ulseth.

By: Ruby Ulseth

Ruby Ulseth — Fri, 11 Jan 2013 22:09:34 +0000

In reply to Elizabeth Rice. In 2002 I had the procedure where your doctor inserted glycerol (SP?) on my trigeminal nerve and deadened it. I have had no further problem (THANK YOU). At his time, I am contemplating having a dental implant in my upper jaw (opposite side of past TN problem). My concern is this may trigger another TN experience. My dentist says this would RARELY happen. I want assurance this DEFINITELY would not happen. What is your recommendation? _

By: Ruby Ulseth

Ruby Ulseth — Fri, 11 Jan 2013 22:09:34 +0000

By: Elizabeth Rice

Elizabeth Rice — Tue, 15 Sep 2009 18:09:13 +0000

Of note: Mayo Clinic is hosting the 20th Anniversary National Conference of the Trigeminal Neuralgia Association next summer. You can visit http://www.fpa-support.org/events/index.html for details.