https://newsnetwork.mayoclinic.org/discussion/hayley-lairmores-mayo-clinic-journey/ News Resources Fri, 06 Aug 2010 04:27:34 +0000 hourly 1 https://wordpress.org/?v=6.9.4 https://newsnetwork.mayoclinic.org/discussion/hayley-lairmores-mayo-clinic-journey/#comment-2491 Fri, 06 Aug 2010 04:27:34 +0000 https://sharing.mayoclinic.org/?p=3737#comment-2491 My mom “diagnosed” me with POTS after reading about it on the internet, too! I’d had three seizures over the course of six months, and anti-convulsants didn’t work. Tests confirmed I didn’t have abnormal brain activity, so doctors couldn’t figure out what was going on. I often felt dizzy and have had persistent stomach problems since childhood, and it took lots of web surfing to finally figure out what was wrong. We urged doctors to perform a tilt-table test, and sure enough it was POTS. You can read my full store on my blog… click my name to go to it. This is such an amazing story, and it’s great that Hayley is doing better! 🙂

]]> https://newsnetwork.mayoclinic.org/discussion/hayley-lairmores-mayo-clinic-journey/#comment-2493 Fri, 06 Aug 2010 04:27:34 +0000 https://sharing.mayoclinic.org/?p=3737#comment-2493 My mom “diagnosed” me with POTS after reading about it on the internet, too! I’d had three seizures over the course of six months, and anti-convulsants didn’t work. Tests confirmed I didn’t have abnormal brain activity, so doctors couldn’t figure out what was going on. I often felt dizzy and have had persistent stomach problems since childhood, and it took lots of web surfing to finally figure out what was wrong. We urged doctors to perform a tilt-table test, and sure enough it was POTS. You can read my full store on my blog… click my name to go to it. This is such an amazing story, and it’s great that Hayley is doing better! 🙂

]]> https://newsnetwork.mayoclinic.org/discussion/hayley-lairmores-mayo-clinic-journey/#comment-2490 Thu, 15 Jul 2010 02:25:33 +0000 https://sharing.mayoclinic.org/?p=3737#comment-2490 It was good to read the article and see the video. I have spent the last year with my 17 year old daughter going through the unknown illness maze. She also felt nauseated but never got sick. Her biggest issue was passing out without any warning. She would pass out 3-7 times a week. Needless to say this wrecked havoc with her school life and life in general. We started out going through a neurologist who was sure she was having seizures. I kept pushing to find an answer. Two GPs, two neurologist and one cardiologist later we finally found a cardiologist, Dr. Hannon, out of Pitt Hospital in Greenville, NC who heard the symptons and gave the diagnosis of Neurocardiogenic Syncopy. The diagnosis was confirmed with a tilt table test. He explained the condition to us and is following the same meds that are being used at the Mayo Clinic. Every system in her body that is controlled by the autonomic nervous system has been affected. Her inability to sleep, digestion, circulation, tiredness, brain fog and the passing out have been extremely hard on her. She is getting better but it has been a long hard year for her. Both POTS and Neurocardiogenic syncope are disorders of the autonomic nervous system. At times the two seem more similar than dissimilar. It is so illusive and the symptoms keep changing. Hopefully Keegan will continue to get better.

]]> https://newsnetwork.mayoclinic.org/discussion/hayley-lairmores-mayo-clinic-journey/#comment-2492 Thu, 15 Jul 2010 02:25:33 +0000 https://sharing.mayoclinic.org/?p=3737#comment-2492 It was good to read the article and see the video. I have spent the last year with my 17 year old daughter going through the unknown illness maze. She also felt nauseated but never got sick. Her biggest issue was passing out without any warning. She would pass out 3-7 times a week. Needless to say this wrecked havoc with her school life and life in general. We started out going through a neurologist who was sure she was having seizures. I kept pushing to find an answer. Two GPs, two neurologist and one cardiologist later we finally found a cardiologist, Dr. Hannon, out of Pitt Hospital in Greenville, NC who heard the symptons and gave the diagnosis of Neurocardiogenic Syncopy. The diagnosis was confirmed with a tilt table test. He explained the condition to us and is following the same meds that are being used at the Mayo Clinic. Every system in her body that is controlled by the autonomic nervous system has been affected. Her inability to sleep, digestion, circulation, tiredness, brain fog and the passing out have been extremely hard on her. She is getting better but it has been a long hard year for her. Both POTS and Neurocardiogenic syncope are disorders of the autonomic nervous system. At times the two seem more similar than dissimilar. It is so illusive and the symptoms keep changing. Hopefully Keegan will continue to get better.

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