Thank you for your note and we are sorry to hear of the medical problems that you are facing. Unfortunately, we cannot diagnose conditions, provide second opinions or make specific treatment recommendations through this correspondence. If you would like to seek help from Mayo Clinic, please call one of our appointment offices. The numbers can be found at http://www.mayoclinic.org/ under “request an appointment.”

Thank you for your note and we are sorry to hear of the medical problems that you are facing. Unfortunately, we cannot diagnose conditions, provide second opinions or make specific treatment recommendations through this correspondence. If you would like to seek help from Mayo Clinic, please call one of our appointment offices. The numbers can be found at http://www.mayoclinic.org/ under “request an appointment.”

I have seen SO many doctors across the state of Texas some of who are SUPPOSED to be experts in this field. I have been seen at Scott and White Austin, UT Dallas. Doctors are SO SO SO SO rude and ALWAYS seems to want to say it is in your head when they can’t figure it out. I have been treated so badly by physicians in general that I have developed almost a cynical mistrust of them all. There are several Texas docs that need to get OUT of the field as their treatment of me bordered on cruel (this was witnessed by others) Once I was told I HAD NO RIGHTS!!! In THIS country I was told I had no rights are you kidding the land of liberals and being politically correct??? I have been accused of faking my illness…. lemme as you HOW do you FAKE a blood sugar of 422????? They ran drug tests and said I was doing drugs that elevated my heart level (all negative)saying I had to be doing something to make my heart rate 190. WHY are doctors ALLOWED to be so cruel? And I say ALLOWED because my only attempt to have one doctor disciplined through the Texas Medical Board resulted in NOTHING the TMB stood right by their doctor who was so blatantly in the wrong. One doctor refused to see me again till I had a psych consult, accused me of faking my illness, causing my own weight loss and not being a diabetic (I was under the care of the same endo for 20 years till he retired and I gave her the mans name she refused to call him) then she unethically terminated the doctor patient relationship despite the fact that my weight had dropped dangerously low and it was obvious I was very ill. I went for my next scheduled appointment and was turned away telling them no doctor in that office would see me. That was then end of my 27 year life in Texas I moved away shortly after and it broke my heart.

Ok that brings us to today. I moved out of Texas when I became so ill I could no longer function and getting help from anyone in the closed minded medical community in Dallas with one of the largest healthcare systems BMC being the absolute WORST! The last doctor I saw in Dallas told me sometimes we die waiting for answers and that HE thought my POTS was under control yet my heart rates are still SO ridiculous I have had to abandon my business, my active life and am now basically housebound. I am living in the city where I was born and have been seeing a doctor here who did a pacemaker/modification that seemed to have solved the problem. After my surgery I didn’t see my heart rate above 90 (it had been average 150 and as high as 224) even when I TRIED to make it… of course I was THRILLED. Then slowly the heart rate crept back up till we are pretty much back where we were. The doctor here has me scheduled for an ablation in 8 days. I am extremely concerned about it as it says that ablation CAN make POTS patients worse. I have a new primary doctor here and I like him as much as I can any doctor and he at least seems to be trying to help. I am doing a 24 hour urine now looking for Addisons disease and am going back to a rheumy to see if possibly the SCL-70 might be now posing the problem at last visit it was “positive with no visible sign of disease progression”. My concern is ablation is permanent and if that isn’t what is wrong WHY am I having it done? I am so confused, each doctor tells you something different blah blah but they are about to permanently alter my heart and make me pacemaker dependent for the rest of my life and I have concerns.

Sorry this is rather ramby but frankly I have 7 days now to make a decision. Added note….. my sister died in 2006 of a ruptured aneurysm my father is terrified he is losing his only remaining daughter. Thanks any suggestions will be welcomed but please try to be positive I have had enough negativity and cruelty from the medical community to last me a lifetime. Thanks

I have seen SO many doctors across the state of Texas some of who are SUPPOSED to be experts in this field. I have been seen at Scott and White Austin, UT Dallas. Doctors are SO SO SO SO rude and ALWAYS seems to want to say it is in your head when they can’t figure it out. I have been treated so badly by physicians in general that I have developed almost a cynical mistrust of them all. There are several Texas docs that need to get OUT of the field as their treatment of me bordered on cruel (this was witnessed by others) Once I was told I HAD NO RIGHTS!!! In THIS country I was told I had no rights are you kidding the land of liberals and being politically correct??? I have been accused of faking my illness…. lemme as you HOW do you FAKE a blood sugar of 422????? They ran drug tests and said I was doing drugs that elevated my heart level (all negative)saying I had to be doing something to make my heart rate 190. WHY are doctors ALLOWED to be so cruel? And I say ALLOWED because my only attempt to have one doctor disciplined through the Texas Medical Board resulted in NOTHING the TMB stood right by their doctor who was so blatantly in the wrong. One doctor refused to see me again till I had a psych consult, accused me of faking my illness, causing my own weight loss and not being a diabetic (I was under the care of the same endo for 20 years till he retired and I gave her the mans name she refused to call him) then she unethically terminated the doctor patient relationship despite the fact that my weight had dropped dangerously low and it was obvious I was very ill. I went for my next scheduled appointment and was turned away telling them no doctor in that office would see me. That was then end of my 27 year life in Texas I moved away shortly after and it broke my heart.

Ok that brings us to today. I moved out of Texas when I became so ill I could no longer function and getting help from anyone in the closed minded medical community in Dallas with one of the largest healthcare systems BMC being the absolute WORST! The last doctor I saw in Dallas told me sometimes we die waiting for answers and that HE thought my POTS was under control yet my heart rates are still SO ridiculous I have had to abandon my business, my active life and am now basically housebound. I am living in the city where I was born and have been seeing a doctor here who did a pacemaker/modification that seemed to have solved the problem. After my surgery I didn’t see my heart rate above 90 (it had been average 150 and as high as 224) even when I TRIED to make it… of course I was THRILLED. Then slowly the heart rate crept back up till we are pretty much back where we were. The doctor here has me scheduled for an ablation in 8 days. I am extremely concerned about it as it says that ablation CAN make POTS patients worse. I have a new primary doctor here and I like him as much as I can any doctor and he at least seems to be trying to help. I am doing a 24 hour urine now looking for Addisons disease and am going back to a rheumy to see if possibly the SCL-70 might be now posing the problem at last visit it was “positive with no visible sign of disease progression”. My concern is ablation is permanent and if that isn’t what is wrong WHY am I having it done? I am so confused, each doctor tells you something different blah blah but they are about to permanently alter my heart and make me pacemaker dependent for the rest of my life and I have concerns.

Sorry this is rather ramby but frankly I have 7 days now to make a decision. Added note….. my sister died in 2006 of a ruptured aneurysm my father is terrified he is losing his only remaining daughter. Thanks any suggestions will be welcomed but please try to be positive I have had enough negativity and cruelty from the medical community to last me a lifetime. Thanks