Sharon, worldwide studies which were sponsored by the Mayo Clinic proved that exercise can improve the fatigue problem that MPN patients all seem to share to some extent. If you are like I was, I needed physical therapy in order to begin an exercise program. Perhaps your doctor would be willing to write orders for this? Once I was able to walk for 1/2 hour daily, I began to feel better. Missing for a few days was enough to cause a setback in my energy level. Best wishes to you –

Would really like to learn more. Being tired is the hardest. Have had et for 5 years and i cant seem to get any answers from my dr. Thank you.

Fibromyalgia and Myelofibrosis are two different illnesses. That’s not to say that there is not pain, both bone and muscle, for some Myelofibrosis patients. For me, digging out of the hole of pain, so to speak, involved very simple exercise under the care of a physical therapist and then when I was able to I walked daily. Later I was able to build on this. It wasn’t until much later that I discovered energy medicine and massage could enhance my wellbeing even further.