Comments on: Living With Myelofibrosis (Part 4 of a 4 part-series) https://newsnetwork.mayoclinic.org/discussion/living-with-myelofibrosis-part-4-of-a-4-part-series/ News Resources Mon, 09 Apr 2012 13:55:29 +0000 hourly 1 https://wordpress.org/?v=7.0.1 By: mayoclinic https://newsnetwork.mayoclinic.org/discussion/living-with-myelofibrosis-part-4-of-a-4-part-series/#comment-3426 Mon, 09 Apr 2012 13:55:29 +0000 https://sharing.mayoclinic.org/?p=9698#comment-3426 In reply to Andy Millburn.

Andy, we’re sorry to hear about your father’s illness. Unfortunately, we cannot diagnose conditions, provide second opinions or make specific treatment recommendations through this correspondence. Here is a link to information on myelofibrosis: http://www.mayoclinic.org/myelofibrosis/
Also by searching on mayoclinic.org, many articles will be available for your research into this disease. Best wishes.

]]> By: Andy Millburn https://newsnetwork.mayoclinic.org/discussion/living-with-myelofibrosis-part-4-of-a-4-part-series/#comment-3425 Sun, 08 Apr 2012 22:52:17 +0000 https://sharing.mayoclinic.org/?p=9698#comment-3425 Hi.I came across this website whilst doing some research into myelofibrosis having recently found out that my father was suffering from it.He was diagnosed with PF Vera around 10 years ago and seemed to live a relatively normal life,with medication. This was until last year when he experienced complications, later diagnosed with being MF. I wasnt aware of how serious the problem was until i started doing my own research. My father is a proud man and was obviously trying to protect his family. I now know the full story and am trying to find ways of making life a little better for him.This website has given me hope that he can lead a good life despite this illness. Do you have any tips on how to cope with the awful nightsweats,fatigue and feelings of extreme cold during the daytime? These are the problems which seem to affect my father the most and i feel that the medical care he is receiving doesn’t seem to improve his quality of life.
Im sure there are many dark days which he doesn’t tell me about where he finds it impossible to stay positive.Hopefully if i can find something to help with these symtpoms,these days will become less frequent.
Thanks for taking the time to read this email.
andy

]]> By: Patricia Wagner https://newsnetwork.mayoclinic.org/discussion/living-with-myelofibrosis-part-4-of-a-4-part-series/#comment-3424 Thu, 01 Sep 2011 21:51:45 +0000 https://sharing.mayoclinic.org/?p=9698#comment-3424 In reply to Nicole.

Thank you, Nichole. Blessings to you, as well.

]]> By: Nicole https://newsnetwork.mayoclinic.org/discussion/living-with-myelofibrosis-part-4-of-a-4-part-series/#comment-3423 Tue, 30 Aug 2011 12:07:33 +0000 https://sharing.mayoclinic.org/?p=9698#comment-3423 My thoughts and prayers are with you, Patricia. Thank you for sharing such an inspiring story with all of us and most importantly, reminding us to live in the moment as each day we have is truly a blessing.

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