Comments on: Marrow transplant knocks out patient’s multiple myeloma https://newsnetwork.mayoclinic.org/discussion/marrow-transplant-knocks-out-patients-multiple-myeloma/ News Resources Mon, 13 May 2013 20:53:45 +0000 hourly 1 https://wordpress.org/?v=7.1.3 By: ginny https://newsnetwork.mayoclinic.org/discussion/marrow-transplant-knocks-out-patients-multiple-myeloma/#comment-3285 Mon, 13 May 2013 20:53:45 +0000 https://sharing.mayoclinic.org/?p=8765#comment-3285 In reply to Jacqueline.

jacqueline,
you sound very courageous! we are looking for a new hematologist in the LA area, if you can refer that would be great.

]]> By: Barbara Thomas https://newsnetwork.mayoclinic.org/discussion/marrow-transplant-knocks-out-patients-multiple-myeloma/#comment-3284 Thu, 09 May 2013 14:27:35 +0000 https://sharing.mayoclinic.org/?p=8765#comment-3284 In reply to Pamela Weyerman.

Thank you Pamela for your encouraging words and steadfast faith through all these dreadful times. Still praying for your complete and amazing recovery.

]]> By: Pamela Weyerman https://newsnetwork.mayoclinic.org/discussion/marrow-transplant-knocks-out-patients-multiple-myeloma/#comment-3283 Mon, 22 Apr 2013 16:22:50 +0000 https://sharing.mayoclinic.org/?p=8765#comment-3283 It has been almost 90 days since my autologous BMT. In August of 2012 I was diagnosed and very sick. My oncologist continues to be amazed at my progress as it was questionable in the medical team’s minds as to whether I would make it through the weekend back in August of 2012. There have been ups and downs, and I did the typical 4 cycles of chemo plus one more infusion. Then, prior to the BMT, there was one more infusion of chemo that made me very sick and caused me to lose my hair. Those of us diagnosed go through a lot but there is so much hope. I am a patient at the University of Colorado Hospital Cancer Center and am doing great. Blood tests show Myeloma markers are on the decrease. Of course I remind my doctor and nurses there is someone else on the team so I must thank God. Stay hopeful and faithful! There is so much that can be done when someone has this disease. We are treated individually of course but there is always hope. God Bless everyone and thank you too for the article that gives us hope and increases our faith.

]]> By: Sela Mont https://newsnetwork.mayoclinic.org/discussion/marrow-transplant-knocks-out-patients-multiple-myeloma/#comment-3282 Wed, 06 Mar 2013 20:24:24 +0000 https://sharing.mayoclinic.org/?p=8765#comment-3282 How long does it take from the time you have your cells removed for an autologous bone marrow transplant and the time you are well enough to go out in public? People don’t usually describe the process and I think it would be very helpful if they did.

]]> By: Rebecca A Craze https://newsnetwork.mayoclinic.org/discussion/marrow-transplant-knocks-out-patients-multiple-myeloma/#comment-3281 Sat, 23 Feb 2013 12:06:24 +0000 https://sharing.mayoclinic.org/?p=8765#comment-3281 I am 67 years old…was diagnosed with MGUS two years ago…there have been three first cousins with myeloma in the family–one of my Dad’s side and two on my Mom’s…and my niece has been battling myeloma and amyloidosis for almost 10 years now…my M-1 protein level has gone from 2.2 to 3.1…bone marrow detected 7% plasma cells 2 years ago…kidneys are okay and full body x-rays show no lesions…MRI of my spine was okay except for some bulging discs…I have fibromyalgia so it is hard for me to distinguish between that and possible MM symptoms. I have repeated bronchitis and colds and it takes me a long time to get rid of them. At my last visit the oncologist said I was at the smoldering stage of MM. So far there is no treatment. How high does the M-1 protein level have to be before I would start treatment?

]]> By: Perry Penniston https://newsnetwork.mayoclinic.org/discussion/marrow-transplant-knocks-out-patients-multiple-myeloma/#comment-3280 Mon, 11 Feb 2013 16:44:19 +0000 https://sharing.mayoclinic.org/?p=8765#comment-3280 What is the usual treatment schedule for melpalon and prednisone? Also for mephalon, thalidomide and prednisone ?

]]> By: Jacqueline https://newsnetwork.mayoclinic.org/discussion/marrow-transplant-knocks-out-patients-multiple-myeloma/#comment-3279 Wed, 30 Jan 2013 10:31:21 +0000 https://sharing.mayoclinic.org/?p=8765#comment-3279 This is my 11th year of battling multiple myeloma. I have a great hematologist/oncologist in the Los Angeles area. I’ve undergone to BMT’s and an autologous stem cell transplant, all of which were positively successful. That’s no I say side effects and several surgeries occurred as a result of meds and chemotherapy.
Currently,, I’m taking velcade, decadron, and revilmid; which are also working well. Throughout this journey, I’ve tried several cocktails and have only been in remission once for about 2 or 3 months. My disease is aggressive and I’m very tired. I’m only 52 yrs of age, yet I feel like a 90 year old.
Hang in there people who feel hopeless as my prognosis was 2 months.

]]> By: susanashephard https://newsnetwork.mayoclinic.org/discussion/marrow-transplant-knocks-out-patients-multiple-myeloma/#comment-3273 Mon, 07 Jan 2013 23:55:27 +0000 https://sharing.mayoclinic.org/?p=8765#comment-3273 In reply to Jan.

Hello and thank you for contacting us. We are sorry to hear about your partner’s diagnosis, but unfortunately, we cannot provide specific recommendations or suggestions through this site. If you would like to have him meet with one of our hematologists, then please contact the Appointment Office directly and the representatives will definitely be able to assist you. http://www.mayoclinic.org/patientinfo/appointments.html

]]> By: Jan https://newsnetwork.mayoclinic.org/discussion/marrow-transplant-knocks-out-patients-multiple-myeloma/#comment-3272 Sat, 29 Dec 2012 04:03:17 +0000 https://sharing.mayoclinic.org/?p=8765#comment-3272 In reply to Lisa Holden.

Lisa, I am sorry to read of your loss. I appreciate your sharing about the excellent care your sister received. I am sure your support and love meant so much to her.

]]> By: Jan https://newsnetwork.mayoclinic.org/discussion/marrow-transplant-knocks-out-patients-multiple-myeloma/#comment-3271 Sat, 29 Dec 2012 03:54:52 +0000 https://sharing.mayoclinic.org/?p=8765#comment-3271 PS.. This was a great article! I wish all of those posting the very best.

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