Comments on: Multifocal motor neuropathy https://newsnetwork.mayoclinic.org/discussion/multifocal-motor-neuropathy/ News Resources Tue, 07 May 2013 13:31:44 +0000 hourly 1 https://wordpress.org/?v=6.7.2 By: Joel Streed https://newsnetwork.mayoclinic.org/discussion/multifocal-motor-neuropathy/#comment-4040 Tue, 07 May 2013 13:31:44 +0000 https://sharing.mayoclinic.org/?p=12329#comment-4040 Bernie,

Dr. Crum says MMN generally does not affect speech. Bulbar ALS starts in speech and swallowing and can progress in different rates. I hope that helps a little.

]]> By: Joel Streed https://newsnetwork.mayoclinic.org/discussion/multifocal-motor-neuropathy/#comment-4039 Sat, 04 May 2013 19:33:59 +0000 https://sharing.mayoclinic.org/?p=12329#comment-4039 In reply to Berniestackpoole@yahoo.com.

Bernie, Thanks for the question. We’ll forward it for a possible response.

]]> By: Berniestackpoole@yahoo.com https://newsnetwork.mayoclinic.org/discussion/multifocal-motor-neuropathy/#comment-4038 Sat, 04 May 2013 19:26:23 +0000 https://sharing.mayoclinic.org/?p=12329#comment-4038 I meant “mis diagnoised”

]]> By: Berniestackpoole@yahoo.com https://newsnetwork.mayoclinic.org/discussion/multifocal-motor-neuropathy/#comment-4037 Sat, 04 May 2013 19:25:06 +0000 https://sharing.mayoclinic.org/?p=12329#comment-4037 Hi all,

Does MMN effect speech. my brother in all was told he had ALS last Nov 2012. He is still the same symptoms today, he is working every day and getting on with life. He gets down at times thinking about his future. he was told he had the bulpar type. do you think he maybe diagnosed or a miracle, or a very slow type?
.

]]> By: Syl Baker https://newsnetwork.mayoclinic.org/discussion/multifocal-motor-neuropathy/#comment-4036 Fri, 03 May 2013 12:54:41 +0000 https://sharing.mayoclinic.org/?p=12329#comment-4036 I have MMN and treated with IVIG every 3 weeks. My primary physician is at Rochester MN Mayo Clinic. I spent the winter in AZ and would like to know more about your neurologist in AZ.

]]> By: stacytheobald https://newsnetwork.mayoclinic.org/discussion/multifocal-motor-neuropathy/#comment-4035 Wed, 17 Apr 2013 17:52:39 +0000 https://sharing.mayoclinic.org/?p=12329#comment-4035 In reply to Jeanett Reuer.

Hi Jeanett, We are sorry to hear about your experience, please feel free to contact our Office Of Patient Affairs at 507-284-4988 to discuss further.

]]> By: Jeanett Reuer https://newsnetwork.mayoclinic.org/discussion/multifocal-motor-neuropathy/#comment-4034 Wed, 17 Apr 2013 14:00:10 +0000 https://sharing.mayoclinic.org/?p=12329#comment-4034 My husband started experiencing symptoms in late 2011. We waited until August of 2012 to see a doctor due to insurance. He was quickly diagnosed with MMN. Went to Mayo for a second opinion and we were both very disappointed with the personnel there; abrupt, rather rude and rushed. He is currently receiving IVIG, and has been since August of last year. He has many side effects with this treatment, so we are now trying to get approved for the SCIG protocal. If you would like referral to a wonderful doctor in the Phoenix area, chat and feel like you’re speaking with someone that understands, let me know!

]]> By: deborah hawks https://newsnetwork.mayoclinic.org/discussion/multifocal-motor-neuropathy/#comment-4033 Fri, 12 Apr 2013 22:41:36 +0000 https://sharing.mayoclinic.org/?p=12329#comment-4033 I. Have multifocal motor neuropaty it is affecting my. Legs and back

]]> By: Jason Pratt https://newsnetwork.mayoclinic.org/discussion/multifocal-motor-neuropathy/#comment-4032 Thu, 04 Apr 2013 12:20:20 +0000 https://sharing.mayoclinic.org/?p=12329#comment-4032 In reply to joan murdock.

Hello and thanks for your question. This webpage on our website may be helpful to you regarding MMN: http://mayoresearch.mayo.edu/mayo/research/neurology/peripheral-nerve.cfm

]]> By: joan murdock https://newsnetwork.mayoclinic.org/discussion/multifocal-motor-neuropathy/#comment-4031 Thu, 04 Apr 2013 07:36:09 +0000 https://sharing.mayoclinic.org/?p=12329#comment-4031 I have been diagnosed with MMN. Would you mind sharing Mayos treatment protocal ?

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