Comments on: Myasthenia gravis – Early detection and right treatment

By: Lynn Everett

Lynn Everett — Wed, 24 Apr 2013 01:53:54 +0000

My husband has MG. He was recently (4 weeks ago) treated with five courses over five days of immunoglobulin G because he had a choking episode. Now he has developed a rash over the upper body and the skin is beginning to peel in some areas. Could this be related to the immunoglobulin G IV’s ? He is being treated with 25mg of Benadryl three times a day in addition to his regular meds of 30mg Prednisone and 60mg of Pyridostigmine
twice a day.

By: susanashephard

susanashephard — Wed, 10 Apr 2013 04:36:55 +0000

In reply to Ron Laughlin.

Thank you for contacting us. Please contact our Appointment Office in Scottsdale, Ariz. and the representatives will be able to assist you with coordinating a consultation. Thanks again. http://www.mayoclinic.org/becomingpat-sct/appointments.html

By: Ron Laughlin

Ron Laughlin — Tue, 09 Apr 2013 20:31:08 +0000

I was diagnosed with mg in 2011. Have been under care of 2 different in NM neurologists who have told me they have little experience with the disease. Have been on pyrodistigmine and prednisone. I am deteriorating markedly. Major fatigue in major muscles, difficulty holding head erect, breathing etc. Have left my home in NM to find help. Am in Tucson with no appts. with qualified neurologist available till after May 15. can you help with an appointment. I am medicare with supplement but am out of network. Will pay necessary fees personally

By: mayoclinic

mayoclinic — Thu, 17 Jan 2013 16:43:22 +0000

In reply to christian wojnas.

Here is a link to information on myasthenia gravis: http://www.mayoclinic.org/myasthenia-gravis/
Unfortunately, we cannot diagnose conditions, provide second opinions or make specific treatment recommendations through this correspondence. If you would like to seek help from Mayo Clinic, please call one of our appointment offices. The numbers can be found at http://www.mayoclinic.org/ under “request an appointment.”

By: christian wojnas

christian wojnas — Thu, 17 Jan 2013 16:38:53 +0000

I was diagnosed with myasthemia gravis , I would like to have an idea in terms of what to do , and in the event of need of surgery what would be the costs involved.(diagnose , surgery, post operation time down etc.
Can you help ?

regards
christian Wojnas , São Paulo, Brazil