Comments on: Scott Hennen on Ulcerative Colitis and Mayo Clinic https://newsnetwork.mayoclinic.org/discussion/scott-hennen-on-ulcerative-colitis-and-mayo-clinic/ News Resources Tue, 21 Jun 2011 13:26:58 +0000 hourly 1 https://wordpress.org/?v=6.9.4 By: Laurie Ann Hamre https://newsnetwork.mayoclinic.org/discussion/scott-hennen-on-ulcerative-colitis-and-mayo-clinic/#comment-2916 Tue, 21 Jun 2011 13:26:58 +0000 https://sharing.mayoclinic.org/?p=8164#comment-2916 Best to you Scott! Still looking and of course sounding Great. I’ll keep you and your family in my prayers.

Love,

The Laur

]]> By: Laurie Ann Hamre https://newsnetwork.mayoclinic.org/discussion/scott-hennen-on-ulcerative-colitis-and-mayo-clinic/#comment-2918 Tue, 21 Jun 2011 13:26:58 +0000 https://sharing.mayoclinic.org/?p=8164#comment-2918 Best to you Scott! Still looking and of course sounding Great. I’ll keep you and your family in my prayers.

Love,

The Laur

]]> By: Victoria Lee https://newsnetwork.mayoclinic.org/discussion/scott-hennen-on-ulcerative-colitis-and-mayo-clinic/#comment-2915 Tue, 01 Mar 2011 17:10:26 +0000 https://sharing.mayoclinic.org/?p=8164#comment-2915 Dear Scott
My name is Victoria Lee, 2yrs ago I was given 1 month to live as a result of Fistulating Crohns colitis, with odds of less than 4% I amazingly survived against the odds, a Pan Proctocolectomy which has left me with a permanent ilieostomy. I just wanted to say hang on in there, life will get better now, being pain free and not losing blood every day is fantastic, just living like a normal person and socialising again is wonderful. I always thought having a bag would be the end, it isn’t it’s the beginning of a healthier happier you. I went on to design a range of beachwear which could be worn by Ostomy patients and the general public, and patented a clip in belt device which fits inside the swimwear, it is a social enterprise with the profits being re invested into a respite holiday house for patients, we hope to come over to The American Ostomy show in Nevada in August, and are busy fundraising for that. We commenced trading last week and I still have to pinch myself to believe it, from an idea drawn on an envelope, to sharing the catwalk at Moda with Calvin Kline, Red or Dead & Ted Baker, dreams really do come true, and I’m developing a new hypoallergenic stoma bag, lucky me was allergic to all the bags,typical me !!! So hang on in there Scott, just now it will all be new, but beieve me this is the first day of the rest of a much better life. I hope you make a speedy recovery, and if we get out to the States we get the opportunity meet you,the website is http://www.glitterbeach.co.uk, the company of course is called Glitter Beach. Hope you didn’t mind a strange wee Scots woman contacting you to wish you well, just wanted you to know things will get better, everyday I look at my husband,son and grandchildren and realise how lucky and blessed I am.
Kind Regards
Victoria Lee

]]> By: Victoria Lee https://newsnetwork.mayoclinic.org/discussion/scott-hennen-on-ulcerative-colitis-and-mayo-clinic/#comment-2917 Tue, 01 Mar 2011 17:10:26 +0000 https://sharing.mayoclinic.org/?p=8164#comment-2917 Dear Scott
My name is Victoria Lee, 2yrs ago I was given 1 month to live as a result of Fistulating Crohns colitis, with odds of less than 4% I amazingly survived against the odds, a Pan Proctocolectomy which has left me with a permanent ilieostomy. I just wanted to say hang on in there, life will get better now, being pain free and not losing blood every day is fantastic, just living like a normal person and socialising again is wonderful. I always thought having a bag would be the end, it isn’t it’s the beginning of a healthier happier you. I went on to design a range of beachwear which could be worn by Ostomy patients and the general public, and patented a clip in belt device which fits inside the swimwear, it is a social enterprise with the profits being re invested into a respite holiday house for patients, we hope to come over to The American Ostomy show in Nevada in August, and are busy fundraising for that. We commenced trading last week and I still have to pinch myself to believe it, from an idea drawn on an envelope, to sharing the catwalk at Moda with Calvin Kline, Red or Dead & Ted Baker, dreams really do come true, and I’m developing a new hypoallergenic stoma bag, lucky me was allergic to all the bags,typical me !!! So hang on in there Scott, just now it will all be new, but beieve me this is the first day of the rest of a much better life. I hope you make a speedy recovery, and if we get out to the States we get the opportunity meet you,the website is http://www.glitterbeach.co.uk, the company of course is called Glitter Beach. Hope you didn’t mind a strange wee Scots woman contacting you to wish you well, just wanted you to know things will get better, everyday I look at my husband,son and grandchildren and realise how lucky and blessed I am.
Kind Regards
Victoria Lee

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