Comments on: Seizure-free after new surgery https://newsnetwork.mayoclinic.org/discussion/seizure-free-after-new-surgery/ News Resources Thu, 18 Apr 2013 03:50:51 +0000 hourly 1 https://wordpress.org/?v=6.7.2 By: Anonymous https://newsnetwork.mayoclinic.org/discussion/seizure-free-after-new-surgery/#comment-4121 Thu, 18 Apr 2013 03:50:51 +0000 https://sharing.mayoclinic.org/?p=15192#comment-4121 In reply to Judith Queen.

Hi Judith,
I was diagnosed in December after a grand mal (tonic clonic is the new clinical name), Followed by a generalized seizzure and then a bunch of partials. I would be happy to share notes. Adult onset sor a healthy middle aged person like me is not so common. It can be a tad frustrating.

Listen. Worse things can happen to a person. I have work and people who need my attention. I have a life to get back to and I am not going to let epilepsy derail me. Learn all that you can . Don’t stop asking questions. The more you know, the more empowered you will be.

Have a pretty medical bracelet made and don’t keep it a secret. You can’t drive. You need support. It takes time to plan around the no car part. But, I have found that I can do it, and that life will go on. You can do it too.

]]> By: Judith Queen https://newsnetwork.mayoclinic.org/discussion/seizure-free-after-new-surgery/#comment-4120 Sat, 13 Apr 2013 22:12:10 +0000 https://sharing.mayoclinic.org/?p=15192#comment-4120 Having perfect health and just this week dx’d with brand new grand mal epilepsy I am convinced that freedom is over. I should have married when I had the chance ! No, seriously, anyone who has comforting words, I’d love to read them. I am a sad creature.

]]> By: Anonymous https://newsnetwork.mayoclinic.org/discussion/seizure-free-after-new-surgery/#comment-4119 Thu, 11 Apr 2013 03:28:40 +0000 https://sharing.mayoclinic.org/?p=15192#comment-4119 This may be the first story of adult onset epilepsy that resembles my idiopathic seizures. The seizure symptoms are very similar. I too, have a leadership position in my work. It is good to hear how you’ve managed your career with epilepsy. It is comforting.

Mayo saved the life of a dear friend with a rare disease. So, perhaps it’s my turn. Thank you, Arden, for speaking out.

]]> By: Polly Gilgenbach https://newsnetwork.mayoclinic.org/discussion/seizure-free-after-new-surgery/#comment-4118 Thu, 14 Mar 2013 19:04:09 +0000 https://sharing.mayoclinic.org/?p=15192#comment-4118 In reply to lynette lanier.

Thank you for your note. Unfortunately, we are unable to diagnose conditions or provide specific medical advice on this site. I have attached a couple of links to pages on our site that may be helpful to you. http://www.mayoclinic.com/health/epilepsy/DS00342; http://www.mayoclinic.com/health/frontal-lobe-seizures/DS00810. If you would like to make an appointment at Mayo Clinic, our appointment telephone numbers are located at http://www.mayoclinic.org.

]]> By: lynette lanier https://newsnetwork.mayoclinic.org/discussion/seizure-free-after-new-surgery/#comment-4117 Thu, 14 Mar 2013 17:15:44 +0000 https://sharing.mayoclinic.org/?p=15192#comment-4117 my son is 17 years old & has suffered with seizures for 4 year been on several med he has partical complex seizures.would like any advice.

]]> By: Brieanne Potts https://newsnetwork.mayoclinic.org/discussion/seizure-free-after-new-surgery/#comment-4116 Wed, 13 Mar 2013 03:14:54 +0000 https://sharing.mayoclinic.org/?p=15192#comment-4116 I have tonic clonic seizures and wonder if this procedure would work for that! That would be so wonderful if i could be seizure free!!

]]> By: Thomas Loftus https://newsnetwork.mayoclinic.org/discussion/seizure-free-after-new-surgery/#comment-4115 Thu, 07 Mar 2013 19:12:51 +0000 https://sharing.mayoclinic.org/?p=15192#comment-4115 In reply to Alden A Domrase.

Please add my address to the epilepsy blog. Thank you.

]]> By: Alden A Domrase https://newsnetwork.mayoclinic.org/discussion/seizure-free-after-new-surgery/#comment-4114 Tue, 05 Mar 2013 22:20:46 +0000 https://sharing.mayoclinic.org/?p=15192#comment-4114 Dr Richard Marsh stopped my grand maul seizures, back in 2005.
Mayo Clinic is the place to go. I was on 3 medications and seizures were getting closer together and I was grateful it worked. I had a cat that knew I was going to seizure hours before,
even though I own a dog kennel. I am happy for Mr. Berg, and Dr Marsch’s continued advances in medicine.
Al Domrase

]]>