Comments on: Surgery helps Jody get control of her life https://newsnetwork.mayoclinic.org/discussion/surgery-helps-jody-get-control-of-her-life/ News Resources Sun, 12 May 2013 19:58:18 +0000 hourly 1 https://wordpress.org/?v=6.9.4 By: Dana Sparks https://newsnetwork.mayoclinic.org/discussion/surgery-helps-jody-get-control-of-her-life/#comment-3949 Sun, 12 May 2013 19:58:18 +0000 https://sharing.mayoclinic.org/?p=12349#comment-3949 In reply to Karen Gammino.

Hello Karen – Thank you for contacting us but we can’t answer medical questions through this social media platform. We can suggest you call for an appointment – here are the phone numbers for all three campuses. Arizona: 800-446-2279 Florida: 904-953-0853 Minnesota: 507-538-3270 Meanwhile, here’s more information about MS http://mayocl.in/11qvPWN that talks about symptoms, treatments etc. Hope this is helpful.

]]> By: Karen Gammino https://newsnetwork.mayoclinic.org/discussion/surgery-helps-jody-get-control-of-her-life/#comment-3948 Sun, 12 May 2013 19:50:21 +0000 https://sharing.mayoclinic.org/?p=12349#comment-3948 I am 40 years old and was diagnosed a few years ago. Was very scary, I had double vision and couldn’t drive, droopy eyelid and very weak. I was given mestinon and wasn’t sure if it was working or not. My condition eventually got better and didn’t take medication at all for 2 years. I am in the process of buying a new home and under alot of stress right now. I am feeling rundown weak. I just started experiencing symptoms of ms. My eyelids are extremely droopy. I work at elementary school teaching and having a hard time making it through the day with my vision issues. I’m wondering if I should go on steroids or possibly have the thymectomy done. It makes me nervous to think of getting the surgery and it not helping. Is it worth getting? Wish I lived closer to mayo clinic. Think I am 5 hrs away. 🙁
It’s nice to hear all of the stories on here cuz you know your not the only one dealing with this annoying, scary disease.

]]> By: Polly Gilgenbach https://newsnetwork.mayoclinic.org/discussion/surgery-helps-jody-get-control-of-her-life/#comment-3947 Wed, 08 May 2013 20:23:57 +0000 https://sharing.mayoclinic.org/?p=12349#comment-3947 In reply to Celia Calderone.

Thank you for your note. Unfortunately, we are unable to diagnose or make specific treatment recommendations through this correspondence. If you would like to schedule an appointment at Mayo Clinic then please contact Arizona: 480-301-1735 Florida: 904-953-0853 Minnesota: 507-284-2511.

]]> By: Celia Calderone https://newsnetwork.mayoclinic.org/discussion/surgery-helps-jody-get-control-of-her-life/#comment-3946 Wed, 08 May 2013 05:07:41 +0000 https://sharing.mayoclinic.org/?p=12349#comment-3946 I have been seeing a neurologist for several months but he still hasn’t decided if I have this condition or not. He has run several tests most of which come back negative but the medicine he put me on helps tremendously and I don’t know what I would do without it. My main symptom is a dropping eye lid with double vision when tired. I also have muscle weakness in my legs, arms and hands. Is there something else this could be? He has ruled out MS.

]]> By: Joel Streed https://newsnetwork.mayoclinic.org/discussion/surgery-helps-jody-get-control-of-her-life/#comment-3945 Sat, 04 May 2013 15:44:53 +0000 https://sharing.mayoclinic.org/?p=12349#comment-3945 In reply to evelyn arcena.

Evelyn,

Sorry to hear about your husband’s condition. If you’re interested in seeking an appointment, here is a good place to start.

http://www.mayoclinic.org/patientinfo/appointments.html

]]> By: evelyn arcena https://newsnetwork.mayoclinic.org/discussion/surgery-helps-jody-get-control-of-her-life/#comment-3944 Sat, 04 May 2013 09:38:58 +0000 https://sharing.mayoclinic.org/?p=12349#comment-3944 my husband leo suffer from myasthenia gravis we nid a financial support for his operation and medicine [mestinon] we have 2 kids please help us

]]> By: Subhodip Biswas https://newsnetwork.mayoclinic.org/discussion/surgery-helps-jody-get-control-of-her-life/#comment-3943 Mon, 01 Apr 2013 10:05:08 +0000 https://sharing.mayoclinic.org/?p=12349#comment-3943 In reply to Terri Jo Shaw Smith.

You have given me inspiration to continue with the fight. I had been detected with MG 2.5 yrs back. Initially it was difficut & still somedays I think its better to have end it all. But i take it as fight and your lines have just reinforced my will to fight even harder.

]]> By: jody willman https://newsnetwork.mayoclinic.org/discussion/surgery-helps-jody-get-control-of-her-life/#comment-3942 Sat, 09 Mar 2013 13:37:21 +0000 https://sharing.mayoclinic.org/?p=12349#comment-3942 In reply to Terri Jo Shaw Smith.

Did having your thymus removed help any?

]]> By: Marian Walsh https://newsnetwork.mayoclinic.org/discussion/surgery-helps-jody-get-control-of-her-life/#comment-3941 Tue, 05 Feb 2013 21:44:18 +0000 https://sharing.mayoclinic.org/?p=12349#comment-3941 It is comforting to realize that I’m not alone. i needed the pep talk to keep fighting. I’m frustrated over lack of medical advice. So much for Ontario Health Care. Marian

]]> By: Terri Jo Shaw Smith https://newsnetwork.mayoclinic.org/discussion/surgery-helps-jody-get-control-of-her-life/#comment-3940 Fri, 18 Jan 2013 00:52:49 +0000 https://sharing.mayoclinic.org/?p=12349#comment-3940 I’m thankful for Mayo Clinic because 38yrs ago a traveling neurologist from there diagnosed me with Myasthenia Gravis. Though still sever and never have seen remission I am a fighter!! I am now 46 yrs old and was the youngest to have my thymus removed, this has came such a long way. To all those with MG please never NEVER give up!! Terri Jo Shaw Smith

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