Comments on: The disease that killed my mother was the same disease that was killing me https://newsnetwork.mayoclinic.org/discussion/the-disease-that-killed-my-mother-was-the-same-disease-that-was-killing-me/ News Resources Mon, 15 Apr 2013 01:21:38 +0000 hourly 1 https://wordpress.org/?v=6.8.1 By: kathlee https://newsnetwork.mayoclinic.org/discussion/the-disease-that-killed-my-mother-was-the-same-disease-that-was-killing-me/#comment-2314 Mon, 15 Apr 2013 01:21:38 +0000 https://sharing.mayoclinic.org/?p=3424#comment-2314 In reply to Penni.

you should read the wheat belly cookbook it will explain that eating glutenfree can make you fat. the flours and sugars etc this book explained what ingredients to use and some healthier recipes.Anything you eat that is closest to one ingredient is best. no artifical flavorings etc that hide gluten and fat.

]]> By: kathlee https://newsnetwork.mayoclinic.org/discussion/the-disease-that-killed-my-mother-was-the-same-disease-that-was-killing-me/#comment-2305 Mon, 15 Apr 2013 01:21:38 +0000 https://sharing.mayoclinic.org/?p=3424#comment-2305 In reply to Penni.

you should read the wheat belly cookbook it will explain that eating glutenfree can make you fat. the flours and sugars etc this book explained what ingredients to use and some healthier recipes.Anything you eat that is closest to one ingredient is best. no artifical flavorings etc that hide gluten and fat.

]]> By: Patti https://newsnetwork.mayoclinic.org/discussion/the-disease-that-killed-my-mother-was-the-same-disease-that-was-killing-me/#comment-2304 Sat, 13 Apr 2013 21:17:41 +0000 https://sharing.mayoclinic.org/?p=3424#comment-2304 Betty, I am glad that you have been given a reason for your sickness and now you are able to treat it. My story follows yours except my mother never had it.I started showing symptoms in 2000 when they finally decided to check me out and truly listen I had bloody bowel movements every time I used the bathroom even to urinate. they did an upper and a lower scope on me and found very many pre cancerous polyps that they removed. They diagnosed me then with irritable bowel syndrome. And left it at that for then. I still was having stomach issues of not being able to get my food past my sphincter muscle. So very painful, I would have to sit and wait for the muscle to relax and allow the food to pass, I told the dr that eating certain foods some more than others caused my stomach to bloat extremely, 5’7″ and weighed 125, very thin but a healthy size after I ate lets say bread the blotting would start,my stomach would look like I was ready to deliver a baby last month! I had an appointment to my dr about my stomach aches, I purposely wore a top the would show how slim I was and how much I would blot in front of the dr so she could and would see what was going on, She said she had never seen this before and she wanted me to stay away from bread it was causing irritable bowel and sent me home. The nurse called me in and the dr said that I have celiac disease. Along with fibromyalgia and slow thyroid, chronic fatigue.

]]> By: Patti https://newsnetwork.mayoclinic.org/discussion/the-disease-that-killed-my-mother-was-the-same-disease-that-was-killing-me/#comment-2313 Sat, 13 Apr 2013 21:17:41 +0000 https://sharing.mayoclinic.org/?p=3424#comment-2313 Betty, I am glad that you have been given a reason for your sickness and now you are able to treat it. My story follows yours except my mother never had it.I started showing symptoms in 2000 when they finally decided to check me out and truly listen I had bloody bowel movements every time I used the bathroom even to urinate. they did an upper and a lower scope on me and found very many pre cancerous polyps that they removed. They diagnosed me then with irritable bowel syndrome. And left it at that for then. I still was having stomach issues of not being able to get my food past my sphincter muscle. So very painful, I would have to sit and wait for the muscle to relax and allow the food to pass, I told the dr that eating certain foods some more than others caused my stomach to bloat extremely, 5’7″ and weighed 125, very thin but a healthy size after I ate lets say bread the blotting would start,my stomach would look like I was ready to deliver a baby last month! I had an appointment to my dr about my stomach aches, I purposely wore a top the would show how slim I was and how much I would blot in front of the dr so she could and would see what was going on, She said she had never seen this before and she wanted me to stay away from bread it was causing irritable bowel and sent me home. The nurse called me in and the dr said that I have celiac disease. Along with fibromyalgia and slow thyroid, chronic fatigue.

]]> By: Kim H https://newsnetwork.mayoclinic.org/discussion/the-disease-that-killed-my-mother-was-the-same-disease-that-was-killing-me/#comment-2303 Mon, 25 Mar 2013 05:39:24 +0000 https://sharing.mayoclinic.org/?p=3424#comment-2303 In reply to Penni.

Have you had your cortisol levels checked? I couldn’t loose weight and found I had cushiness disease. High levels of cortisol in blood. Causes many other health problems.

]]> By: Kim H https://newsnetwork.mayoclinic.org/discussion/the-disease-that-killed-my-mother-was-the-same-disease-that-was-killing-me/#comment-2312 Mon, 25 Mar 2013 05:39:24 +0000 https://sharing.mayoclinic.org/?p=3424#comment-2312 In reply to Penni.

Have you had your cortisol levels checked? I couldn’t loose weight and found I had cushiness disease. High levels of cortisol in blood. Causes many other health problems.

]]> By: terri https://newsnetwork.mayoclinic.org/discussion/the-disease-that-killed-my-mother-was-the-same-disease-that-was-killing-me/#comment-2302 Thu, 21 Mar 2013 03:42:24 +0000 https://sharing.mayoclinic.org/?p=3424#comment-2302 In reply to Penni.

i had the same problem with my celiac diease. i have had to start eating alot of salads to keep my wt down and now i’v lost 40 pounds. making big changes to my diet cause i’v been so sick with a lack of vitamin d 3. its a shock but i’m doing it to live.

]]> By: terri https://newsnetwork.mayoclinic.org/discussion/the-disease-that-killed-my-mother-was-the-same-disease-that-was-killing-me/#comment-2311 Thu, 21 Mar 2013 03:42:24 +0000 https://sharing.mayoclinic.org/?p=3424#comment-2311 In reply to Penni.

i had the same problem with my celiac diease. i have had to start eating alot of salads to keep my wt down and now i’v lost 40 pounds. making big changes to my diet cause i’v been so sick with a lack of vitamin d 3. its a shock but i’m doing it to live.

]]> By: Norma https://newsnetwork.mayoclinic.org/discussion/the-disease-that-killed-my-mother-was-the-same-disease-that-was-killing-me/#comment-2301 Wed, 13 Mar 2013 15:30:35 +0000 https://sharing.mayoclinic.org/?p=3424#comment-2301 In reply to Debra Rose.

I don’t know if you have ever looked into electrohypersensitivity, but you may want to do so. Do you have compact fluorescent light bulbs in your home,fluorescent light bulbs, wifi. I know this may sound strange, however, I suffer from this condition and researched for years with similar symptoms and removed these things from my home and saw a miraculous difference in my symptoms, however, when you around them again it remains a problem. It is a difficult situation. Look up Magda Havas, or Dr. Deitrich Klinghardt for info on this topic for starters. I hope this helps. It is difficult when you can’t get answers from a M.D. but just keep researching on your own.

]]> By: Norma https://newsnetwork.mayoclinic.org/discussion/the-disease-that-killed-my-mother-was-the-same-disease-that-was-killing-me/#comment-2310 Wed, 13 Mar 2013 15:30:35 +0000 https://sharing.mayoclinic.org/?p=3424#comment-2310 In reply to Debra Rose.

I don’t know if you have ever looked into electrohypersensitivity, but you may want to do so. Do you have compact fluorescent light bulbs in your home,fluorescent light bulbs, wifi. I know this may sound strange, however, I suffer from this condition and researched for years with similar symptoms and removed these things from my home and saw a miraculous difference in my symptoms, however, when you around them again it remains a problem. It is a difficult situation. Look up Magda Havas, or Dr. Deitrich Klinghardt for info on this topic for starters. I hope this helps. It is difficult when you can’t get answers from a M.D. but just keep researching on your own.

]]>