Comments on: Waldenstr̦m Macroglobulinemia: Integrated Treatment and Research at Mayo Clinic https://newsnetwork.mayoclinic.org/discussion/waldenstrom-macroglobulinemia-integrated-treatment-and-research-at-mayo-clinic/ News Resources Fri, 28 Sep 2012 17:41:00 +0000 hourly 1 https://wordpress.org/?v=6.8.3 By: Anna McClanahan https://newsnetwork.mayoclinic.org/discussion/waldenstrom-macroglobulinemia-integrated-treatment-and-research-at-mayo-clinic/#comment-2273 Fri, 28 Sep 2012 17:41:00 +0000 https://sharing.mayoclinic.org/?p=3389#comment-2273 I am a 56 yr old female who was diagosed with WM 6 yrs ago. I have fatigue and horrible neuropathy in both legs. I had Rituximab about 6 yrs ago and have been prescribed numerous meds Рmost recently Lyrica and Tramadol for pain. I just applied for an exam at the Mayo Clinic in Jacksonville, Fla. I am praying for a positive response. I would really like to communicate with others who have a diagnosis of WM and are also symptomatic. Peace & Blessings.

]]> By: Joyce Groenke https://newsnetwork.mayoclinic.org/discussion/waldenstrom-macroglobulinemia-integrated-treatment-and-research-at-mayo-clinic/#comment-2272 Thu, 28 Jul 2011 15:25:24 +0000 https://sharing.mayoclinic.org/?p=3389#comment-2272 In reply to Waldenstroms Macroglobulinemia.

Yes, it is okay.

]]> By: Joyce Groenke https://newsnetwork.mayoclinic.org/discussion/waldenstrom-macroglobulinemia-integrated-treatment-and-research-at-mayo-clinic/#comment-2278 Thu, 28 Jul 2011 15:25:24 +0000 https://sharing.mayoclinic.org/?p=3389#comment-2278 In reply to Waldenstroms Macroglobulinemia.

Yes, it is okay.

]]> By: Waldenstroms Macroglobulinemia https://newsnetwork.mayoclinic.org/discussion/waldenstrom-macroglobulinemia-integrated-treatment-and-research-at-mayo-clinic/#comment-2271 Thu, 28 Jul 2011 01:36:50 +0000 https://sharing.mayoclinic.org/?p=3389#comment-2271 Could i linkt to this video from my website, i think it would be very handy for the people who visit?? Let me know if that would be okay. Thanks, D

]]> By: Waldenstroms Macroglobulinemia https://newsnetwork.mayoclinic.org/discussion/waldenstrom-macroglobulinemia-integrated-treatment-and-research-at-mayo-clinic/#comment-2277 Thu, 28 Jul 2011 01:36:50 +0000 https://sharing.mayoclinic.org/?p=3389#comment-2277 Could i linkt to this video from my website, i think it would be very handy for the people who visit?? Let me know if that would be okay. Thanks, D

]]> By: Peter DeNardis https://newsnetwork.mayoclinic.org/discussion/waldenstrom-macroglobulinemia-integrated-treatment-and-research-at-mayo-clinic/#comment-2270 Sat, 16 Apr 2011 10:59:10 +0000 https://sharing.mayoclinic.org/?p=3389#comment-2270 In reply to karen pelham.

Diagnosis at an age less than mid-30’s is very rare. Recently, I because aware of a 19-year old female in Australia diagnosed with WM. From a “support” standpoint, your son may be interested in being in contact with her. I’d encourage you to join the support discussion list devoted solely to patients with WM – IWMF-TALK. You can find more information about it at: http://www.iwmf.com/services/iwmf-talk.aspx

Best of health to you, and especially, your son!

]]> By: Peter DeNardis https://newsnetwork.mayoclinic.org/discussion/waldenstrom-macroglobulinemia-integrated-treatment-and-research-at-mayo-clinic/#comment-2276 Sat, 16 Apr 2011 10:59:10 +0000 https://sharing.mayoclinic.org/?p=3389#comment-2276 In reply to karen pelham.

Diagnosis at an age less than mid-30’s is very rare. Recently, I because aware of a 19-year old female in Australia diagnosed with WM. From a “support” standpoint, your son may be interested in being in contact with her. I’d encourage you to join the support discussion list devoted solely to patients with WM – IWMF-TALK. You can find more information about it at: http://www.iwmf.com/services/iwmf-talk.aspx

Best of health to you, and especially, your son!

]]> By: Morie Gertz https://newsnetwork.mayoclinic.org/discussion/waldenstrom-macroglobulinemia-integrated-treatment-and-research-at-mayo-clinic/#comment-2269 Wed, 26 Jan 2011 14:49:06 +0000 https://sharing.mayoclinic.org/?p=3389#comment-2269 We are incapable of commenting on therapy in a patient we have not had the opportunity to evaluate

]]> By: Morie Gertz https://newsnetwork.mayoclinic.org/discussion/waldenstrom-macroglobulinemia-integrated-treatment-and-research-at-mayo-clinic/#comment-2275 Wed, 26 Jan 2011 14:49:06 +0000 https://sharing.mayoclinic.org/?p=3389#comment-2275 We are incapable of commenting on therapy in a patient we have not had the opportunity to evaluate

]]> By: karen pelham https://newsnetwork.mayoclinic.org/discussion/waldenstrom-macroglobulinemia-integrated-treatment-and-research-at-mayo-clinic/#comment-2268 Wed, 26 Jan 2011 14:21:53 +0000 https://sharing.mayoclinic.org/?p=3389#comment-2268 Do you have any younger patients with Waldenstroms?? My son is dx with Waldenstoms and he is 28 years old……

also h e have a consult at Dana Farber and is now being treated at U of M..
Would Mayo have a different protocol than treatment with velcade and plasmapharsis?

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