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May 8, 2018 · Children’s Hospital Colorado, Mayo Clinic announce collaboration on rare congenital heart defect

Red heart in the hand of a physician

AURORA, Colorado — Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome and Children’s Hospital Colorado are collaborating to provide solutions for patients with hypoplastic left heart syndrome, a rare and complex form of congenital heart disease in which the left side of the heart is severely underdeveloped.

“We are thrilled that Children’s Hospital Colorado has joined the hypoplastic left heart syndrome consortium because it brings the research to more patients who may have otherwise had to travel in order to participate,” says Timothy Nelson, M.D., Ph.D., director, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome. “It means that individuals with HLHS [hypoplastic left heart syndrome] now have more options at their fingertips while the consortium members are coming together to accelerate finding new and better solutions for these patients.”

“We’ve already taken advantage of this exciting new opportunity,” says James Jaggers, M.D., cardiothoracic surgeon and co-medical director of the Heart Institute at Children’s Hospital Colorado. “Just last week, we had a mother deliver her baby with hypoplastic left heart syndrome, and we collected cord blood and sent it to Mayo Clinic. When we perform the heart surgery on this baby in three to four months, we’ll be ready to inject the baby’s own stem cells into the heart muscle, which, hopefully, will help make it even stronger.”

This announcement brings the total number of hypoplastic left heart syndrome consortium members to five: Mayo Clinic, Children’s Hospital of Philadelphia, Children’s Hospital Los Angeles, Children’s Minnesota, and Children’s Hospital Colorado. The bicoastal collaboration is expanding the development of cell-based, innovative research opportunities to transform the lives of people living with hypoplastic left heart syndrome. The consortium aligns regional centers into a nationwide collaboration led by the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome at Mayo Clinic to accelerate innovation on hypoplastic left heart syndrome, discovery sciences and clinical expertise by investing local resources back into research.

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About the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
Founded in 2010, the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects, including hypoplastic left heart syndrome. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science to diagnostic imaging to regenerative therapies.

About Children’s Hospital Colorado
Children’s Hospital Colorado is a leading pediatric network 100 percent dedicated to the health and well-being of children, adolescents and young adults. Recognized nationally and internationally for its medical, research, education and advocacy programs, Children’s Colorado is at the forefront of research in childhood disease and pioneering treatments that are shaping the future of pediatrics, as well as offering everyday care for kids throughout Colorado and surrounding states. For more information, visit the Children’s Hospital Colorado website, or connect with Children’s Hospital Colorado on Facebook and Twitter.

About Mayo Clinic
Mayo Clinic is a nonprofit organization committed to clinical practice, education and research, providing expert, comprehensive care to everyone who needs healing. Learn more about Mayo ClinicVisit the Mayo Clinic News Network.

Media contacts:

Dec 5, 2017 · Mayo Clinic, Children’s Minnesota announce rare congenital heart defect collaboration

Red heart in the hand of a physician

ROCHESTER, Minn.— Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome and Children’s Minnesota are collaborating to prevent heart failure for hypoplastic left heart syndrome, a rare and complex form of congenital heart disease in which the left side of a child’s heart is severely underdeveloped.

“We are thrilled to be collaborating with Children’s Minnesota, because it brings new research right to the patients,” says Timothy Nelson, M.D., Ph.D., director, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome. “By being a part of the hypoplastic left heart syndrome consortium, Children’s Minnesota is now part of a national network that includes Mayo Clinic and Children’s Hospital of Philadelphia. It means that individuals with hypoplastic left heart syndrome now have more options when it comes to participating in groundbreaking clinical trials and other hypoplastic left heart syndrome research.”

“We’re excited to expand the treatment options we’re able to offer to our hypoplastic left heart syndrome patients and families through this collaboration, given the size and strength of our program,” says David Overman, M.D., chief of cardiovascular surgery, Children’s Minnesota. “This collaboration also improves important access to clinical trials and allows us to pool scientific knowledge with other top cardiovascular programs around the country.”

The consortium aligns regional centers in a nationwide collaboration led by the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome at Mayo Clinic. The consortium accelerates innovation on hypoplastic left heart syndrome, discovery sciences and clinical expertise by investing local resources back into research. The program seeks to work with five to seven regional centers across the U.S. to fund the development of cell-based, innovative research opportunities that can transform the lives of people living with hypoplastic left heart syndrome.

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About the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
Founded in 2010, the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome is a collaborative network of specialists bonded by the vision of preventing heart failure for children affected by congenital heart defects, including hypoplastic left heart syndrome. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science to diagnostic imaging to regenerative therapies.

About Children’s Minnesota
Children’s Minnesota is the seventh largest pediatric health system in the United States and the only health system in Minnesota to provide care exclusively to children, from before birth through young adulthood. Children’s maintains its longstanding commitment to the community to improve children’s health by providing high-quality, family-centered pediatric services and advancing those efforts through research and education. Please visit childrensMN.org.

About Mayo Clinic
Mayo Clinic is a nonprofit organization committed to clinical practice, education and research, providing expert, comprehensive care to everyone who needs healing. For more information, visit mayoclinic.org/about-mayo-clinic or newsnetwork.mayoclinic.org.

MEDIA CONTACTS
Suzanne Ferguson, Mayo Clinic Public Affairs, 507-284-5005, 
newsbureau@mayo.edu
Madeline Riggs, Children’s Minnesota Public Relations, 612-812-2539, 
Madeline.Riggs@childrensmn.org

Feb 13, 2017 · Mayo Clinic, Children’s Hospital of Philadelphia announce rare congenital heart defect collaboration

person drawing a heart and heartbeatROCHESTER, Minn. and PHILADELPHIA — Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome and Children’s Hospital of Philadelphia are collaborating to delay and prevent heart failure from hypoplastic left heart syndrome, a rare and complex form of congenital heart disease in which the left side of a child’s heart is severely underdeveloped.

“We are very excited to be working with Children’s Hospital of Philadelphia to explore better treatment options for patients with hypoplastic left heart syndrome,” says Timothy Nelson, M.D., Ph.D., director, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome. “By entering into this collaboration, we are making it possible for all children with hypoplastic left heart syndrome to be able to participate in cell-based treatments, no matter their location. This new hypoplastic left heart syndrome consortium significantly expands the reach of hypoplastic left heart syndrome research.”

“Children’s Hospital of Philadelphia has a long-standing history of caring for children with hypoplastic left heart syndrome, and this exciting collaboration with Mayo Clinic offers promising opportunities to develop new ways to give patients an even better quality of life,” says Robert Shaddy, M.D., chief of Cardiology, Children’s Hospital of Philadelphia. “Lifesaving palliative surgery reroutes a child’s blood flow, but patients may have significant health problems, as they grow up with a unique circulation. Cell-based therapy offers us another potential option – beyond conventional medical treatments, ventricular assist devices or transplants – for a child or young adult with a failing heart.”

MEDIA CONTACTS:
Suzanne Ferguson, Mayo Clinic Public Affairs, 507-284-5005, 
newsbureau@mayo.edu

Joey McCool Ryan, Children’s Hospital of Philadelphia Public Relations, 267-426-6070, McCool@email.chop.edu

The collaboration is part of a consortium across the nation and will allow for a decrease in the amount of time from research and discovery to the clinical application of innovative cell-based therapies.

The consortium aligns regional centers into a nationwide collaboration led by the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome at Mayo Clinic to accelerate innovation on hypoplastic left heart syndrome, discovery sciences, and clinical expertise by investing local resources back into research. The program seeks to work with five to seven regional centers across the U.S. to fund the development of cell-based innovative research opportunities to transform the lives of people living with hypoplastic left heart syndrome.

###

About the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
Founded in 2010, the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome is a collaborative network of specialists bonded by the vision of delaying or preventing heart failure for individuals affected by congenital heart defects, including hypoplastic left heart syndrome. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science to diagnostic imaging to regenerative therapies.

About Children’s Hospital of Philadelphia
Founded in 1855 as the nation’s first pediatric hospital, Children’s Hospital of Philadelphia is ranked third by U.S. News & World Report Best Children’s Hospital for Pediatric Cardiology and Heart Surgery. Through its long-standing commitment to providing exceptional patient care, training new generations of pediatric healthcare professionals and pioneering major research initiatives, Children’s Hospital has fostered many discoveries that have benefited children worldwide.

About Mayo Clinic
Mayo Clinic is a nonprofit organization committed to clinical practice, education and research, providing expert, whole-person care to everyone who needs healing. For more information, visit http://www.mayoclinic.org/about-mayo-clinic or https://newsnetwork.mayoclinic.org/.