On May 14, 2011, Nancy Capelle, a wife and mother of two young daughters, clinically died at the age of 40. She suffered spontaneous coronary artery dissection (SCAD), a condition that blocks blood flow to the heart causing a heart attack, abnormalities in heart rhythm and sudden death. But thanks to the quick actions of a paramedic, she is alive today to tell her harrowing story of life and death.
What was so hard for Nancy to comprehend following her medical emergency, she says, was that in a blink of an eye and without warning, healthy young women can be stricken by SCAD and die. Yet it didn’t appear from her research into the condition that the medical community was actively researching the tragic phenomenon. Perhaps it was because it was considered so rare that support for such a study would be difficult to find, she thought, or that finding enough SCAD survivors would be even more problematic.
Then Nancy came across an article in the Aug. 30, 2011, edition of The Wall Street Journal titled, “When Patients Band Together -- Using Social Networks To Spur Research for Rare Diseases; Mayo Clinic Signs On.” For Nancy, this article changed the dark face of SCAD dramatically, and she would find herself and many other young women just like her able to see daylight again.