• Leukemia Survivor Volunteers in a Unique Way to Help Fellow Bone Marrow Transplant Recipients

Charlie Willwerth, a 61 year-old leukemia survivor and bone marrow transplant recipient from St. Augustine, Fla. is taking the necessary steps to help bring life-saving stems cells to others in need of a bone marrow transplant. Some people who overcome a life-threatening illness feel motivated to give something back to those who helped make their recovery possible. Charlie Willwerth, a 61-year-old leukemia survivor and bone marrow transplant recipient from St. Augustine, Florida, is taking steps to help bring life-saving stems cells to others in need of a bone marrow transplant.

Two years out from his bone marrow transplant, and with his leukemia in remission, Charlie recently completed courier training with Be The Match, the world’s largest bone marrow registry, to become a volunteer stem cell courier. His new “job” -- transporting life-saving stem cells from a donor’s location to a matching recipient -- can take him anywhere in the world.

“This is the most direct way I can help others who have helped me get a second chance at life,” says Charlie. “If it wasn’t for my donor, I might not be here today to have the opportunity to help others with needs similar to mine.”

Charlie’s discovery of his leukemia came as a real shock. After 22 years as an air traffic controller, he retired in 2003. He then became involved in an aviation radio show called “Flight Time Radio” on a local Jacksonville talk radio station. Other than undergoing heart valve-replacement surgery in 2006, his retirement life was pretty normal until 2011, when he noticed he was becoming easily tired and winded doing any kind of physical activity. A trip to his cardiologist and a series of blood tests, along with a bone marrow biopsy at a local hospital, revealed that he had leukemia. Charlie was referred to Mayo Clinic, where the diagnosis was confirmed. He was treated with a several-month chemotherapy regimen by his physician James Foran, M.D., a leukemia specialist. Things were looking good in the management of his disease until a serious relapse occurred in April 2012.

“Mr. Willwerth initially responded well to chemotherapy treatment for his leukemia, but a relapse months later indicated that a bone marrow transplant was the best option he was going to have to cure his disease,” says Dr. Foran.

During another round of chemotherapy treatments, Charlie was added to the Be The Match database (operated by the National Marrow Donor Program) but was told it could be many months before a matching donor could be identified. That’s when his miracle occurred. Only six weeks after being added to the database, a matching donor was identified. Charlie received his bone marrow transplant in September 2012. His donor was a young woman in her 20s from Texas, who had signed up to be a donor at a drive on her college campus. Today, almost two years from his bone marrow transplant, Charlie's leukemia is in remission, and he’s feeling stronger each day.

“Now that I’m feeling much better, I wanted to resume an active life again. Not only am I resurrecting my aviation radio show with a new station in St. Augustine, but I decided I wanted to volunteer for the courier program at Be The Match,” Charlie says. “I learned that few recipients ever become couriers. So I wanted to take that step and make the commitment to help bring hope to others in need. I recently completed my training and look forward to my first courier assignment.”

Dr. Foran was pleased to learn of Charlie’s plan to give back to the organization that had given him a second chance at life. “It’s wonderful to know a patient was so affected by what an anonymous donor did for him that he wants to give back this way and facilitate the same for others,” says Dr. Foran. “As one of the largest bone marrow transplant programs in the country, Mayo Clinic has enjoyed a long collaborative relationship with Be The Match and the National Marrow Donor Program. Without them and the volunteer donors who give so selflessly of themselves, many of our patients would never have had this chance at a cure.”

Northeast Florida area residents can support the #UnitedInHope Be the Match Marrow Registry Drive on Saturday, Sept.13 from 12 noon-4pm at the St. John’s Town Center (in front of Maggiano’s). The event is sponsored by Mayo Clinic, Nemours Children’s Clinic and Wolfson Children’s Hospital in cooperation with Be the Match. For more information on this event and to learn about becoming a donor, visit http://BeTheMatch.org/UnitedInHope.



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