• By Suzanne Ferguson

Mayo Clinic, Children’s Minnesota announce rare congenital heart defect collaboration

December 5, 2017

Red heart in the hand of a physician

ROCHESTER, Minn.— Mayo Clinic’s Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome and Children’s Minnesota are collaborating to prevent heart failure for hypoplastic left heart syndrome, a rare and complex form of congenital heart disease in which the left side of a child's heart is severely underdeveloped.

“We are thrilled to be collaborating with Children’s Minnesota, because it brings new research right to the patients,” says Timothy Nelson, M.D., Ph.D., director, Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome. “By being a part of the hypoplastic left heart syndrome consortium, Children’s Minnesota is now part of a national network that includes Mayo Clinic and Children’s Hospital of Philadelphia. It means that individuals with hypoplastic left heart syndrome now have more options when it comes to participating in groundbreaking clinical trials and other hypoplastic left heart syndrome research.”

"We're excited to expand the treatment options we're able to offer to our hypoplastic left heart syndrome patients and families through this collaboration, given the size and strength of our program," says David Overman, M.D., chief of cardiovascular surgery, Children's Minnesota. "This collaboration also improves important access to clinical trials and allows us to pool scientific knowledge with other top cardiovascular programs around the country."

The consortium aligns regional centers in a nationwide collaboration led by the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome at Mayo Clinic. The consortium accelerates innovation on hypoplastic left heart syndrome, discovery sciences and clinical expertise by investing local resources back into research. The program seeks to work with five to seven regional centers across the U.S. to fund the development of cell-based, innovative research opportunities that can transform the lives of people living with hypoplastic left heart syndrome.

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About the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
Founded in 2010, the Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome is a collaborative network of specialists bonded by the vision of preventing heart failure for children affected by congenital heart defects, including hypoplastic left heart syndrome. The specialized team is addressing the various aspects of these defects by using research and clinical strategies ranging from basic science to diagnostic imaging to regenerative therapies.

About Children’s Minnesota
Children’s Minnesota is the seventh largest pediatric health system in the United States and the only health system in Minnesota to provide care exclusively to children, from before birth through young adulthood. Children’s maintains its longstanding commitment to the community to improve children’s health by providing high-quality, family-centered pediatric services and advancing those efforts through research and education. Please visit childrensMN.org.

About Mayo Clinic
Mayo Clinic is a nonprofit organization committed to clinical practice, education and research, providing expert, comprehensive care to everyone who needs healing. For more information, visit mayoclinic.org/about-mayo-clinic or newsnetwork.mayoclinic.org.

MEDIA CONTACTS
Suzanne Ferguson, Mayo Clinic Public Affairs, 507-284-5005, 
newsbureau@mayo.edu
Madeline Riggs, Children’s Minnesota Public Relations, 612-812-2539, 
Madeline.Riggs@childrensmn.org

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